Journal Entries

July 7, 2021 – I just added the picture of the infrared sauna that I have been using. My Oncologist at the COC has been encouraging me to get one for home. I finally did and I love it. Actually, I don’t like sitting in them and heating up, but I do enjoy how I feel after I use it. I am still using the wet sauna. I am using the infrared sauna twice a week for fifteen minutes and the wet sauce twice a week for ten minutes. I have added a picture of the infrared sauna I use. I got it from Therasage 360. I chose this one because not only did it come recommended by my COC Oncologist, but it also has low EMF emissions!!! I have also been having a great results working with a Hypnotherapist for my eating issues. I manage to put on six pounds. I still would like to gain five more. I don’t have danger signals going off when I look at food anymore and I don’t feel so stressed about eating. I am exploring different meal options. I bought Tofu for the fist time. I plan to try a recipe out in the Air Fryer. I have come up with some smoothie recipes that are high in calories and healthy!!! The best part is just actually feeling hungry and enjoying eating food again. It feels so good. I have been wanting to add a link to my testimonial I did for the COC. I put the link in my link section. I will also put it here. https://youtu.be/Gw890guSidE. A little over a year ago they asked me to write a three minute testimonial to represent Adenocarcinoma. I hope mine and others inspire others to hold onto hope. There are other options and I am thankful for each and every one of them.

June 11, 2021 – Today is my three year anniversary. Three years ago today is when I got the call that changed my life forever. It is an anniversary that I wish I didn’t need to brag about, but I will because I am blessed to still be here. Unfortunately I may have developed Cachexia. I lost ten pounds in two months. My therapist says I have an eating disorder. I see food and I immediately categorize it into categories of carbs, sugars, dairy = inflammation = more cancer!!! I have been starving myself for the past year and a half and have only been eating enough to get by. I decided to take some time off from work so that I can see if I can put my weight back on. My Oncologist told me that Cachexia is a clinical diagnosis and there isn’t a test to give me to make sure I have it. She said if I can gain weight, I won’t get the diagnosis. I don’t like what I have read about Cachexia so I am going to prove I don’t have it. I won’t lie, I am nervous and scared. I have upped my therapy sessions to once a week and I will also be trying Hypnotherapy to see if I can clear this mental block I’ve created with food. I did a search for Cachexia in Joe Tippen’s “mycancerstoryrocks” group and I saw some people comments on things they have tried to battle Cachexia. I will do like I did in 2019 and pour through everything I can find. I am going to focus on relaxing, meditating, trying new foods to see what I like now (chemo changed up my taste buds), and try to get rid of this mental block I have created with food. I was working out with a trainer at the gym to help me build muscle, but my husband and I agreed today that I will postpone my workouts for one month and focus on therapy and eating. My trainer and the dietitian at the hospital do not think I have Cachexia and instead think I am malnourished. My trainer said she can still see muscle on me. I pray that they both are right.

May 14, 2021 – I had a Mammogram, Pet Scan, and a brain/back MRI over the past week. I received my results yesterday. All clear!!! I did two chemo treatments in January and stopped them in February and March so I could get my COVID vaccines. I had chemo on April 9th and had a horrible week of side effects. I said no more. I can’t keep putting chemo into my body and going through this until I physically see cancer on a scan. I know they say you can’t go into remission or be cured of this kind of cancer at stage 4 and the best I can hope for is NED. Well, I truly am praying after being NED for two years that I can stay off of chemo. I know it’s a risk but I have to take it. I want so badly to change the statistical outcome of this disease for myself and anyone that gets effected by it. I met a man on the plane last night and his name was Steven. Something told me to tell him my results and I’m glad I did. I just tapped him and said “guess what, I’m in remission”. I know my Oncologist won’t use those words but I will. I will claim it and shout it to anyone willing to listen because I have been to hell and back over and over again and I know my journey ahead may still have more battles I will need to fight but I will take this victory and enjoy every second of it. Steven told me about his esophagus problems. Fortunately for him they have been treating it but he hasn’t been seen in awhile. I told him about Barrett’s and the risk of cancer. I know it sucks to scare people but cancer sucks more. Early detection is key and preventive measures can be put in place to try and keep from getting this. To try!!! At least we can try. Anyhow I pray he and no one gets cancer. I know I can’t stop it. Breaks my heart. I truly wish people didn’t have to suffer. Anyhow, I am officially off of chemo. I will be scanned every three months and do labs monthly. If or when (those that know me know I hate to only use “when”, because remember “when” writes me off and “if” gives me hope) we see cancer on a scan, we will start me back on chemo. Until then I will continue to live in these three months increments. Cancer patients understand what I mean by that. Glory to God. Hallelujah and praise Jesus because I truly believe my faith is what has kept me going.

February 11, 2021 – I had one of my routine CT scans this morning. I got the report emailed to me. I have a spreadsheet where I list all my scans and their results. I like to do a side-by-side comparison from day one up until now. I’m happy to say I am still NED!!! I cried in the parking lot before going in for the scan. I cried when I read the report. This up and down roller coaster is maddening. I get so anxious (scanaxiety) a week or two before every scan. I don’t think that feeling of dread will ever go away. I told my cousin today it’s literally waiting to see if I am dying. How does one stay sane going through that every three months!!! I meditate, pray, pray, pray, and keep asking God to just give me a purpose to stick around and I’ll do it. Last night when I said my prayer I told God “I don’t want to die but I am tired of this fight. I’m willing to keep fighting if you keep giving me a purpose. I know you give us what we need and not what we want and that we can’t question you. I know I want to live but if you feel I am not needed anymore then I accept your decision”. I put my meditation playlist on and I felt peace. I feel asleep fast and I usually have trouble sleeping the night before a scan. Not this time. I’ll always have fear. Yet I seem to find peace in my faith in just believing that if I’m here it’s because I have a purpose and when that purpose ends so will my time here. I am not in control of this. All I can do is be grateful for every day I open my eyes and have another chance to fulfill my purpose. Another chance to enjoy this life I’ve been given after I had taken so much of it for granted. I’m a work in progress. I’m basically getting back to me. I have started reading again. I love to read. I don’t get anything done because once I start a book my attention is completely overtaken by the book. I am walking my dogs by myself again and they are behaving beautifully around other dogs. They even ignore ducks. I have started trying to spend time with family members and friends (safely) and to try and stay in touch with people. Working and fighting cancer is like working two full time jobs. This pandemic hasn’t made it easy either. I was just working on getting my introverted self out of the house when the world shut down around me. I remember having neuropathy pain so bad in my feet that dancing was impossible. I don’t have much rhythm but I still love to dance. A friend came into town for her birthday and me and all my girls got together for her birthday. I danced all night. We had so much fun. I cried later because I remember thinking I would never get to dance again. I felt so free that night. I hold onto that. Every day there is going to be some bad news. I give it a few minutes, toss it up to God, and I focus on all the positive things around me.

January 11, 2021Happy New Years!!! I had chemo treatment #49 on 1/6/21. I hate chemo as I am sure anyone that gets it does. The week after is the worse. The nausea and pain is annoying. I know it could be a lot worse. I just hate knowingly making myself sick every three weeks. This is one week I wish I could just stay in bed for. I’ll get through it like I always do. I just feel so down and depressed during this week. I always have to find ways to smile. My back started hurting on Saturday. Turns out it is swollen along my spine. Checked it today, and it is still swollen. I am nervous because I know my cancer was in a lymph node located next to the spine. I am worried, but going to try hard not to think about it. That is the way it is when you have cancer. Any problem you have you worry it’s “the cancer“. I want to make two bucket list this year. One that has things I can do during a shelter-in-place and one with things I can do if the world ever opens back up. I will only look at list that is applicable to my counties current status. This way I don’t spend the year staring at a list that contains things I can’t do. The past couple of years have been tough. I’m tired. I’m just tired of it all. What emotion hurts the most? Anger or sadness. Either way I see they are both negative emotions and I don’t like to feel them. Yet I have to fight through every day to keep them from taking over. Even more so the week after chemo and the day before. I’m a whining baby today. I am just really feeling it. December 4, 2020 – Hello. It’s been awhile. I had my last scan 11/2/20 and I’m still “stable” or NED. This December makes one year since I started getting my chemo treatments every three weeks instead of every two. My quality of life has greatly improved. I still battle with muscle weakness, on and off bouts of nausea, neuropathy pain, and of course appetite issues. Appetite is my number one problem. I am still struggling to eat solid foods. It’s not that I don’t want to. I just don’t usually feel hungry. This entire year has been good and bad. Good in that I felt grounded and more at peace than I did in 2019. I have been feeling more hopeful, positive, and focused. My neuropathy has improved. I can walk and stand longer. My hair is even growing back. The bad part for me has been putting my bucket list on hold. I was supposed to go to Las Vegas this month to celebrate my birthday with my bestie. COVID has shut that down. I wasn’t going to gamble. My bestie lives out there and I just wanted to curl up in some warm pajamas, drink hot cocoa and maybe a few shots of tequila (already cleared the tequila through my Oncologist. He said no to margaritas because of the sugar 😜) and watch some Sci-fi movies while we talked and laughed. I miss them. My other best friend was trying to meet us out there too. So now I’m disappointed, but I’m not giving up. I will just hold onto my faith that this too shall pass and I will get to take that trip as well as many others.

M

April 14, 2020 – It has been a while since I have been on here. Covid!!! It has benched me. I am on quarantine as many of us are because of my “underlying condition”. If I did not have this “underlying condition” I still would be at home because everyone but the managers got sent home. I some times wish I could work from home. In the mean time I have just been driving my husband and 15 year-old crazy because they are pretty much it for me of the people I get to see. One thing I did do that I am very proud of is I made a decision not to have chemo on 4/10. They called me and cancelled my 3/20 chemo and I was devastated and worried. I thought it over and realized it probably was best for my immune system not to have it. I then had a phone appointment on 4/9 and I ran my idea of skipping my April chemo so that I can keep my white blood cell count up in case I do get Covid. Since I have been stable for so long they agreed with me that I may be okay. I am supposed to have chemo on 5/1, but they are aware that I am planning to skip that one as well. I will have a Pet Scan in mid May and get the results on 5/22. I am praying that I will remain NED during this time of not having chemo. Am I nervous? I sure am. Especially since I have not had chemo since 2/28. I feel like I am playing Russian Roulette with my life. However, I have a strong feeling that I am going to be okay. Even if something shows up on my Pet next month I still feel like I will be okay. I told Oncology, if something shows up, we will hit it hard and go from there. I do have to say that I feel fortunate to be in a position to choose treatment or not. In the mean time I am getting ready to help my son finish up his freshman year through Distance Learning. I have been upset not being able to work because I was so excited to have returned to work. In due time I will be back. In the mean time my doctor said my main job is to keep taking care of me. They also said this “there isn’t any proof that all of what you are doing is working, but at this point we have to acknowledge something you are doing is working”. It felt so good to hear them say that. She told me to keep doing what I have been doing. Even asked me about the COC protocol and told me to make sure I keep on it and to keep taking all of my supplements. I sure will!!! I hope the rest of you are coping well. I have been praying for all of us.

February 29, 2020 – I just want to say I am touched by all of the people that have reached out to me. I tried to go in and respond to some of your emails. I am currently doing chemo right now so my energy level is real low. Give me a few days to pick back up and I will go in and respond to all of those that have sent me emails. 😘

February 16, 2020 – My first journal entry on my blog. I am still trying to figure out how to maneuver around Word Press. 🙂 For the most part I got most of what I have been wanting to share on here. I am sure I will continue to tweak it, make grammar changes etc., as the days pass. Happy Sunday!!!